Bestcilia workshop for Polish PCD patients
On the 12-13th of September 2015 in Warsaw, Poland, a workshop for Polish PCD patients took place. Organized by Bestcilia WP7 leader, International Institute of Molecular and Cell Biology (IIMCB) in Warsaw, the workshop not only aimed to present the state-of-the-art information on ciliary disorders to PCD patients and their relatives. It also served to integrate the community of the Polish PCD patients, through the meeting of the Polish Ciliary Dyskinesia Society. Attended by a unexpectedly high number of participants, the workshop was deemed a great success.
At the first day of the workshop, eight seminars were presented by the scientists, medical doctors and physiotherapists regarding the theoretical basis of PCD and ciliary disorders.
The second day of the workshop was primarily oriented at PCD patients and their relatives and a more practical approach to PCD was presented. The participants received training in bronchotherapy, physiotherapy and epidemiology. In addition, in order to further disseminate knowledge on PCD within lay audience, during the event, the printed Polish-language version of ‘What is PCD’ brochure (funded by Bestcilia) has been distributed among the participants.
An important aspect of the event was a general meeting of the members of the Polish Ciliary Dyskinesia Society (‘Polskie Towarzystwo Dyskinezy Rzęsek’). Members of the Society elected a new Board of Directors and established main goals for its activity in the upcoming year. Members of the Society also decided to publish the electronic version of the Polish ‘What is PCD’ brochure, to support dissemination of the basic knowledge on PCD in the community of Polish PCD patients. The brochure will available soon on Society’s website.
A large attendance at the workshop proved an urgent need for this information on modern aspects of PCD – an unexpected number of as many as 120 Polish PCD patients and their relatives participated in the workshop.
The event was organized by Bestcilia WP7 leader, IIMCB in Warsaw, and its co-operating institutions: the Institute of Tuberculosis and Lung Diseases in Rabka-Zdroj and the Institute of Human Genetics Polish Academy of Sciences in Poznan.